Blessings that come with Faith

Background:

In April 2015 Natasha first noticed weakness on her left side and began experiencing double vision. On May 01, 2015 she was diagnosed with DIPG (Diffuse Intrinsic Pontine Glioma). DIPG is a rare, aggressive and inoperable tumour in the brainstem that occurs almost exclusively in children. The tumour is interwoven, interlaced, knitted within the brainstem’s normal tissue.

In June 2015 Natasha underwent 31 radiation treatments. In august 2015 the MRI suggested the tumour had shrunk by 15%. In November 2015 the MRI suggested the tumour was stable. At Christmas 2015 we noticed Natasha's symptoms got worse and Natasha asked the oncologist for another MRI. In January of 2016 the MRI suggested the tumour was in transition and expected to grow. Natasha accepted the offer to undergo a second round of 17 radiation treatments ending March 1.

Soon after Natasha’s initial diagnosis, she became an advocate for kids fighting cancer. Please go to the menu icon on this page and check out her blogs, our news updates, her YouTube channel and Facebook page.

This past fall, Natasha asked to get baptized. Water baptism identifies a person as a disciple of Christ and celebrates the passage from an old life into a new life in Christ. Simply stated, it is an outward sign of an inward change. Natasha has a strong faith, recently telling her mom "I have so much faith in God that my first daughter is going to be named Faith”. 

Recently:

God has given us three unrelated coincidences that have drawn our attention to anointed healing miracles occurring at Bethel church in Redding California.

The first came through Kris, the mother of Liam’s friend, Max. On Monday February 1, Natasha and Saskia joined Liam and a group of his friends for dinner at a pizza restaurant.  Max’s mom Kris was there and introduced Saskia to Becca, mom of Liam’s friend Preston. Becca was the first to tell Saskia about Bethel church and sent her a video link of one of their healing services.

The following day, out of the blue, Saskia’s nephew Dan texted Saskia telling her that he and his wife were taking an on line course from Bethel church. They were wondering if we’d be interested in learning more about it.

The third coincidence came on Thursday February 11th.  Bill got an email from his old high school friend, Joy. She said that she was following Natasha’s story and praying for a miracle.  She also mentioned that her eldest son, Curtis, was recently ordained at Bethel Church in Redding, CA.

By this time, Saskia was thinking, “OK, this is weird. Three times I am getting unrelated nudges to Bethel Church in Redding California.” Doing her due diligence she began researching and learning.

She ordered Bill Johnson’s latest book, listening with all her heart with a renewed openness to any nudging guidance from God. 

We know Natasha is in God’s hand and we are trusting Him, and we are asking God to hear our prayers to heal her fully. Saskia’s prayer is for Bill, Liam, Natasha and herself is to stay open to God working in our lives "outside of the box” as we know it!

On February 15th, Saskia mention the three coincidences to Natasha, jokingly saying, “Maybe we should go for a trip to visit Bethel”. Moments later, Natasha called her back into her room and said, "Mom, God just whispered to me that you, me and Kris (Max’s mom) are supposed to go to Bethel”.  Saskia replied, “Ok. You tell Kris.” (Kris has also been struggling with health issues and could use some healing)

Natasha told Kris, who was thrilled to be included. Saskia then asked Becca if she would like to come along.  Becca quickly replied, “I’d be honoured.” 

The week of February 15th, Saskia showed Liam a video testimony of God’s healing and part way through he blurted out; "We have to bring Natasha to Redding. God wants to heal her.” He looked shocked and said to Saskia, “God just told me that”.  He later described his experience as suddenly getting tunnel vision, and feeling his heart slow right down.  He is amazed that God spoke to him so clearly.

Liam shared his experience with his friend Preston (Becca’s son) and they both agreed that they should join the trip to Redding.  They also agreed that their friend Dylan should come as well. Like most of us, Dylan has a wounded soul and could also use some healing. All three Mom’s agreed to chip in for Dylan’s flight.

In the process of coordinating travel arrangements, Becca informed Kris and Saskia that an anonymous person has paid for everyone’s flights!

A couple days ago, Bill was relating all this to his mom, Lynn.  She was taken aback and had a hard time waiting for Bill to tell the full story because she had her own Bethel story to share: Recently, a friend of hers, who has been regularly praying for Natasha, approached Lynn to say, “Lynn, I need to tell you about this Bethel church in Redding, California.”

Natasha finishes her second round of radiation tomorrow, Tuesday March 1st.  Plans are complete for the entourage to visit Bethel church in Redding, CA March 4-7.  The group includes:

Liam, Natasha and Saskia

Dylan, Max and Max’s mom Kris

Preston and his mom Becca

We believe God can fully and miraculously heal Natasha right here and now. We know God is not limited to time or place, and, we also know God works in mysterious, glorious ways. We are faithfully following his nudges. When Jesus walked this earth, many were healed through the power of God. We believe that miracles are available today. We faithfully believe God can fully heal Natasha, Kris and Dylan as well as touching Saskia, Liam, Preston and Becca!  If you agree say, “Amen!” God is always Good!

 

Thoughts from Natasha's Dad

Thoughts from Natasha’s dad… …

This journey started May 1st 2015.  Within this journey are many stories:

  • A young, healthy, active girl suddenly having to deal with an aggressive tumor growing in her brain, and all the physical, emotional, psychological and spiritual turmoil that brings.

  • A mother whose world turns upside down and embarks on a mission to save her child.

  • A father who has the instinct to serve and protect his children and who now finds himself in completely unchartered waters.

  • A brother who, in the midst of defining himself, is thrust into a whole new reality.

  • A close friend watching someone she loves become physically weaker and weaker.

  • A grandmother …

  • An uncle …

  • Cousins …, family friends…, teachers at school…

Natasha’s diagnosis has affected many people, most of all her.  Her desire to ‘go public’ vastly expanded the number of people touched by her story.  Natasha, and all her family, have experienced many blessings over the past 9 months.  The support, in its many forms, from people close and far has been astounding.

Part of my experience has been continually seeking a balance: holding on to hope, faith and belief in positive possibilities, while grappling with the gravity of Natasha’s disease.  I try, and often succeed, at seeing the positive – counting the blessings.

Not today.

Today Natasha had her fist treatment in this, her second, round of radiation therapy.  It was a tough go.  She came down with a cold a few days ago and is congested and feeling lousy.  She vomited just before getting ready to go the hospital.  Her tooth fell out while en route to the hospital (normal part of dental development).  She was assigned to a treatment room different than what she used last time. (it’s actually a better room, but she wasn’t up for something different).  Anyways, the day didn’t unfold as a set up for a successful first treatment.

Hard to see the positives.  Easy to see the negatives. 

I hate:

  • my daughter experiencing the emotional turmoil

  • my daughter experiencing her body become weaker and less reliable

  • the doctors saying they can only treat, not cure

  • the pressure and stress on all of us

  • she isn’t going to school

  • her going through arduous treatment, with no assurance of outcome

  • hearing my daughter calling out to me in desperation for the treatment to stop, – and not responding to her.

I’ve had friends say to me, “I can’t imagine how you are holding it together.”  I’m not always holding it together.  I’m not sure how I get from day to day.  Faith is part of it for sure.  As tenuous at it often seems, I trust in God.  Tomorrow, or the next day, will be easier to get through than today.  Later today, or tomorrow, Natasha will giggle.  Her giggle is nourishment.

Treatment update

Over the Christmas Holidays, Natasha became aware that her left arm and leg were becoming weaker.  She requested an appointment with her oncologist to get tested.  That appointment resulted in the confirmation that she is getting weaker, and an MRI was scheduled.

The MRI happened Monday January 4, and the next day we spoke to Natasha’s oncologist about the results.

The MRI back in August showed a 15% reduction size of the tumor (attributed to the radiation treatments that ended July 2).  The MRI in November showed no increase in size.  This recent scan shows that the tumor has started to grow slightly.  The oncologists expect that the growth will continue.  Our conversation with the oncologist covered the current availability of trials, treatments available here in Calgary, what to expect if the tumor continues to grow, and palliative care services available to us.

Providing a second round of radiation is a new approach.  Many hospitals won’t provide this.  There are a handful of cases that do, however, show this to be safe and life extending.  The oncologist recommended a second round of radiation.

We then had the conversation with Natasha, letting her know that the tumor has grown.  She was not surprised by this, but incredibly sad to have it confirmed.  Her immediate response was “I will do radiation again.”  Knowing how unpleasant the sessions were for her last June, this was a powerful statement.  We then explained that radiation is a treatment, not a cure – AND – we still hold on to hope.

We’ve since spoken to the Radiation Oncologist to discuss the details.  We will likely begin the preparations next week: Natasha will get a new mask made and have a scan for precise measurements of her anatomy.  Those scans will be layered with the MRI scans of the tumor.  This provides the basis of the intricate calculations required for the treatments.  Her first round included 31 treatments.  This time it will be about ½ of that.  The first treatment is aimed at February 1.

We still hold on to hope.  We humbly pray, asking God to heal Natasha.  When we ask Natasha what her prayer request is to God, she says. “I want to live and stay with my family.  It’s pretty simple.”

Natasha MRI Results from November 13, 2015 Facebook; Help Natasha Fight DIPG Post

Natasha's MRI Results

Natasha's oncologist contacted us and he is relieved with the results.

The report indicates the tumour to be stable in size. The volume of necrosis in the tumour is less than on the Aug scan as well. The oncologist cannot explain with any certainty a meaning of that. He can only speculate that the brainstem is healing itself in places where it was necrotic in the past - or that normal brainstem is replacing dead tumour. He cannot prove either.

This is great news. We will continue to explore treatment options and look for opportunities for Natasha to both "Be Happy and Live Long!"

A HUGE THANK YOU to all of you for your ongoing prayers and support!!

August 12, 2015 - update

Hello Everyone,

We hope everyone is having a great summer. We have been having a blast travelling and visiting with family and friends. We are in town this week to catch up. Natasha as you know completed her 31 days of radiation treatment on July 02, 2015 she has been feeling better and stronger. On August 11, 2015 Natasha had a follow up MRI and powered through it very well.

Today August 12th, 2015 we had an appointment with her Oncologist and the good news the tumour shrunk by ~15%. Thank you for all your prayers and support,  please continue to share and pray!

We hope you all have a great rest of the summer!

Hugs, Saskia, Bill, Liam and Natasha (Oma, Ryder and Mia too)

 

Ask Me Anything July 1 Live Chat

The Truth 365 is currently in Calgary, Canada with 11-year-old cancer fighter Natasha Gould and her family. As you may know Natasha was diagnosed with DIPG on May 1 of this year and she immediately started sharing her story through a very honest and powerful blog.

We are here in Canada to interview Natasha for one of our upcoming documentaries and thought it would be fun for her to do a live Facebook chat tomorrow night (July 1) at 8 PM ET/6 PM MT. The chat will go for about 30 to 45 minutes. 

We will have her login as an admin of The Truth 365 Facebook page and you can ask her any question. The questions don't all have to be about cancer. They can be about anything. July 1 is Canada Day so you can ask her about her home country if you want to.

The goal is for Natasha to have fun and to connect with many of our amazing friends and supporters. She doesn't quite understand yet that she has the ability to be a voice for all children fighting cancer because she is a great (and willing) communicator.

Please check back tomorrow night and comment on the post that Natasha makes at 8 PM ET/6 PM MT. She will then reply to your comment. 

Thank you!!!

Stay Happy Movie Night: From Bill and Saskia

The Stay Happy Movie Night at Natasha’s and Liam’s school was a huge success.  We had a great time.  We are grateful to all the people that worked so hard to make it happen.  When thanking people, it’s hard to know where to start and where to stop.

School Staff and students came up with theme idea and many teachers and students and parents volunteered for various duties.  Some parents and students who couldn’t attend came the next morning to clean up.  Although we can’t thank them all by name, we want to recognise Sashi Shergill, Darrell Lonsberry, Jaime Groeller, Deirdre Bailey, Gail Stevenson, Jody Pereversoff and Heather Fawcett.  Other school staff that helped included Kevin Sonico, Ivey Waite, Rick Fawcett and Linda Burlet.  Also to mention are the parent volunteers and the grade 9 student volunteers.  Thank you!

A core group of Saskia’ s friends have been organizing key support functions for our family.  They played a huge role in the Movie Night as well.  Thanks so very much to Lesley King, our campaign manager, Catherine McLean, Sue Gatenby, Sally Grotsky, Alison Bush.  A huge thank you also goes to Denise, Victoria and Yvonne! We were amazed to see the number and variety of silent auction items.  Thank you to each of the item donors, and to the bidders.

The live auction was very entertaining.  The auctioneer was highly skilled at driving up the bids – all with a laugh.  His skill is much appreciated.  And again thank you to the bidders!

The 6 food trucks were a valued part of the evening.  What’s a party without great food?!  Thank you to each of the vendors for being there, and contributing back to the cause!

Thanks to the band, ‘Alright Gents’ who provided some excellent music, helping create a fun atmosphere.

The evening culminated, of course, in a movie.  Big Heroes 6 was enjoyed by an audience huddled in parkas and under blankets.  Thankfully the evening turned out to be clear and dry, however it was also breezy and chilly!  Thanks to Fresh Air Cinema for showing the movie.

We also send our feelings of appreciation to all the neighbours of the school for tolerating the festivities so late into the evening.  And we were thrilled to see that some of those neighbors attended the event!

We are so happy with how it all worked out.  It was overwhelming to see all the people that came out to enjoy the evening and support Natasha.  Natasha had a carefree and fun filled time just being with her friends.

We are approaching the homestretch with Natasha’s radiation therapy (8 more sessions!) We have received many blessings so far on this journey.  The Stay Happy Movie Night was a big one. 

TheTruth365 Invites Natasha to Speak at Curefest.org

TheTruth365

Natasha..An International Voice for All Children Fighting Cancer...We predict that 11-year-old Canadian Natasha Rose Gould will change the world for the better. Just 6 short weeks ago Natasha was diagnosed with DIPG, an aggressive and inoperable brain tumor. From the very beginning she decided that she wanted to share her thoughts and feelings with the public. She wrote, "I will be taking everyone with me through this journey." 

One of our followers shared her first blog post with us and we were blown away. On her own she was giving a voice to all children with cancer in a very clear, concise and effective manner. We have never encountered a person like Natasha or a situation where a child spoke out from the very beginning. We have worked with several exceptional children but all of them became advocates further into their battles. 

We are very happy to announce that we will be working closely with Natasha and her family through The Truth 365. I (Mike) will be flying to Calgary, Canada in two weeks to spend a few days interviewing Natasha for our upcoming documentary and short films.

We have also invited her to speak at CureFest on September 20 on the National Mall. This will help her reach a very wide audience which is one of her major goals. 

Please leave a note here for Natasha and like her Facebook page:

https://www.facebook.com/prayfornatasha?fref=ts:

Here are a few excerpts from her blog posts: These two comments show her wisdom and compassion. 

"Trust me as bad as being a kid with cancer sounds, being a parent who's kid has cancer is 10 times worse. It breaks my heart knowing that they have to watch me go through this."

"This whole incident hit my family like a rock to the head, but the next day was even harder...My friends that i have known the longest were the most difficult to tell, I had to be soft on them but still get the point across...After me and my friends finally accepted it, we went on our day like normal, like nothing was wrong. We laughed, we smiled and we lived on."

Some statements are brutally honest with a touch of humor. This is comment about the smell of her radiation treatment. 

"It smelt horrible. if you close your eyes and try and imagine 10 moldy decrepit dead pigs, that have sat in the moist heat of California for a week, you have got my smell."

Some show the innocent advice of an 11-year-old child with a new pet.

"As cute as a kitten may sound or look, trust me only get involved if you have time. Cleaning up poop and other gross stuff is a big part of the job so don't go into mothering a kitten if you are grossed out easily." 

Again, please leave a note here or visit her Facebook page.

 

Press Release: Calgary Girl Puts a Voice to Childhood Cancer

Press Release

Calgary Girl Puts a Voice to Childhood Cancer

A school community comes together in support of DIPG Cancer Awareness

What:     Connect Charter School in Calgary is hosting a Fundraiser and Awareness event ‘stay happy movie night’ (www.prayfornatasha.ca).

This event is to raise awareness for DIPG Brain Cancer. It will be an Outdoor Movie with MerchandiseYYC Food Trucks, and a Silent Auction with proceeds going to DIPG Cancer Awareness, and to Help Natasha Fight Brain Cancer (www.prayfornatasha.ca

Who: On May 1st, 2015, Natasha Gould, a student in Grade 6 at Connect Charter School was diagnosed with Diffuse Intrinsic Pontine Gliomas (DIPG) a highly aggressive and difficult to treat brain tumor found at the base of the brain, mostly in children.

This event was the idea of the students of Connect Charter School, and is being planned and hosted by students at the school.

Where:            
Connect Charter School
5915 Lewis Drive SW
Calgary (Lakeview Community)

When:             
Friday June 19, 2015 - 8:00 p.m. – 11:30 p.m. MST

Tickets:             To purchase tickets go to www.eventbrite.ca (stay happy movie night)
                        Family: $25, Adult: $10, Child: $5 

Members of the media please contact Lesley King with any questions or requests.
Phone: 403-606-1939
Email: lesleyfiaking@mac.com 

About DIPG Brain Cancer

Diffuse intrinsic pontine glioma (DIPG) is a type of brain tumor found in the pons, part of the brainstem on the lower back of the brain, near the top of the spinal cord. DIPG primarily affects children, with most diagnoses occurring between 5 and 7 years of age. DIPG makes up 10-15% of all brain tumors in children, with about 100-150 new diagnoses per year in the United States and about 300 per year in all of North America and Europe. Unlike many other pediatric cancers, there has been little progress in improving treatments and cure rates for DIPG over the last few decades.  

About Natasha Gould

Natasha is a bright and brilliant 11-year old girl with a gift for connecting with people – but especially with children with cancer.

Since her diagnosis, she has been bravely and adeptly blogging and vlogging about her experience. Her blogs have put a voice to how it feels to be a kid with cancer – something no child has done before.

Through her website (www.prayfornatasha.ca ) her blogs have garnered interest from around the world – including an invitation from the co-founder of www.thetruth365 to participate in a documentary on childhood cancer, and to speak at www.curefestdc.org in September, 2015 in Washington DC. 

Contact

www.prayfornatasha.ca

prayfornatasha@gmail.com

#prayfornatasha

FB: Help Natasha Fight DPIG

An Update on our quest for good Food & Nutrition

To all of you lovely people that have offered to to make meals for our family, 

First of all THANK YOU! It is so nice to come home from treatment and not have to think about what is for dinner, it is very much appreciated!

As you can only imagine, there are very many opinions, some based on fact, some based on personal experience and some based on who knows what, on how to eat when one is facing the battle that Natasha is facing. We have done some research, consulted with some people, and have come up with this as our plan for now

The things we know for sure:

  • Natasha is allergic to tree nuts, so basically all nuts are out !

What we are eliminating from our diet:

  • All processed foods, think bags, boxes, packages that have a long list of ingredients that you cannot pronounce and have no idea what they are.
  • Refined sugars

What  we are keeping:

  • Veggies, lots and lots of veggies!! Anything  colour, shape texture, preferably organic, or locally grown. ( Currently Natasha’s favourites are Cucumbers, carrots and tomatoes.)
  • Fruit - preferably in season, organic or local
  • Meat- organic, free range,antibiotic & steroid free. This may sound like a lot of restrictions, but is quite easy to find at community health foods, blush lane market, most butcher  shops.
  • Whole grains- Quinoa, rice, Think breads that only have a handful of ingredients that you can pronounce and identify.
  • Fats- good quality, virgin, organic, cold pressed for most
  • Dairy - organic, least amount of additives possible ( ex: Plain yogurt, we can add our own fruit)

Other things to note:

  • If you are preparing anything that has sauces, it would be greatly appreciated if they could be kept separate, then Natasha can add as she sees fit.
  • If things cannot be frozen please put a bright sticky note on it, so it doesn’t get missed
  • Food in containers that we can recycle are appreciated.

Please find below:

  • Information on the Max Love Project www.maxloveproject.org - a reference to fighting cancer with nutrition. 
  • A link to www.onceamonthmeals.com - a great site with whole food recipes for freezer cooking. 

Do not feel that you are limited to these just some ideas!! Again, THANK YOU so much for your assistance, it is truly appreciated.

Saskia and Bill